The study assessed the experience of sex workers, men who have sex with men, people who use drugs and transgender people in Africa with consultations for the Global Fund, UNAIDS and PEPFAR. An online survey had 99 respondents from 25 African countries, and I spoke with key populations representatives in Cameroon, Kenya, Malawi, Nigeria, Uganda, and Tanzania, as well as a focus group in Malawi. The report was cosponsored and co-authored by AMSHeR, the Africa Sex Workers Alliance, Gender DynamiX, and Transbantu Association Zambia.
42 percent of key populations who responded had been consulted on national HIV strategic plans, 33 percent on Global Fund funding requests, and 19 percent on PEPFAR operational plans
Many complained that consultation was cursory and tokenistic, and few had seen the final plans or budgets to verify whether their input was included
Participation was complex, time-consuming, and unfunded — it often involved taking time off from day jobs, or travel at the respondent’s own expense
Some described retaliation or threats from key actors in their countries if they criticized performance of existing programmes
Despite the challenges, most expressed determination to continue to engage, in order to press for meaningful change.
As we think about future development of mechanisms to manage funds for the Covid-19 response, what works and what does not, it’s important to hear and reflect on these voices. The report includes recommendations, which the report partners discussed in depth with the Global Fund, UNAIDS and PEPFAR at the time.
More broadly, perhaps we should think about a community HIV archive to save reports like these from vanishing…
Scholars have recently critiqued human rights as a purely Eurocentric construct that has failed to find wider appeal and is now on the decline. Some cite the apparent success of China’s repressive political regime in support of this argument, but depicting China as uniformly authoritarian risks missing the persistence of domestic forms of human rights advocacy and mobilization.
This chapter, “The Persistence of Chinese Rights Defenders”, which I wrote a couple of years ago for the Oxford Handbook of Law and Anthropology, draws on my experience as a rights advocate to review the history of civil society mobilization in China since 2000, including actions taken in domestic courts, in non-governmental organizations, and through social media. Despite repeated crackdowns, the arrest and disappearance of leading human rights defenders, and Chinese authorities’ interference with UN human rights mechanisms, some Chinese human rights defenders do find innovative ways to persist in rights-based advocacy, such as the practice of weiguan (public counterveillance during political trials).
I argue that the world has entered a more intense phase of struggle over the meaning and application of human rights norms in diverse local contexts, and that the human rights framework facilitates transnational solidarity.
To order from your local bookshop, try Indiebound – or if you’re not sure who that would be, go to Bookshop to order it online while supporting independent booksellers in general. The book is also available from Amazon, of course — but please support independent bookstores if you can. Wherever you get your copy, I’d be grateful for an honest review on Goodreads or Amazon – in our data-driven world, the more reviews it gets, the more visible it will be.
I had the chance to reunite with some of the Caribbean activists I wrote about in the book, who did their own community-led key population size estimates in 6 countries that had never had them before – as the book describes, they mobilized to draft the questionnaire, develop the research methods, interview hidden key populations, and analyze the data. Thanks to the amazing online HIV2020 conference organized by communities living with and affected by HIV, we were all able to reunite on Zoom and geek out about participatory action research. Watch the recording here. Look on the right-hand side of the screen for interpretation in Spanish, French, Portugese and Russian!
We’ll have more events soon – including an exciting one organized by AIDS activists, so please stay tuned.
For decades, the International AIDS Conference has successfully convened a massive biannual meeting, bringing together a diverse community of scientists, researchers, activists and officials, as well as a smattering of celebrities. At a turning point with a battered global strategy and the devastation caused by a second global pandemic, COVID-19, the global AIDS movement has never been in more urgent need of such frank and diverse conversations. Sadly, the conference which launched online this week has never been more divided: while scientists and UN officials gather in the official meeting, AIDS 2020 Virtual, community activists have broken away to hold a parallel conference, HIV 2020.
With restrictions in many countries on nongovernmental organizations, and sweeping new laws coming into play in response to COVID-19, is space closing for civil society, journalists and other whistleblowers in global health? Leading international activists and journalists debated this question from national and international perspectives, on 19 May 2020, as part of the Graduate Institute’s 73rd World Health Assembly week. Co-organised by the Global Health Centre, STOPAIDS and Medicus Mundi International.
Gargeya Telakapalli, Research Associate, People’s Health Movement
Mercy Korir, Medical Doctor; Journalist, KTN News, Kenya
Mike Podmore, Executive Director, STOPAIDS; Chair, Action for Global Health
Nadejda Dermendjieva, Executive Director, Bulgarian Fund for Women
Thomas Schwarz, Executive Secretary, Medicus Mundi International
Moderated by Meg Davis, Special Advisor, Strategy and Partnerships, Global Health Centre
In this first episode of Right On: Human Rights Activists Respond to COVID-19, we talk to three leading human rights experts: law professor Scott Burris (Temple University), Patrick Eba (UNAIDS country director, Central African Republic) and Yaqiu Wang (China researcher, Human Rights Watch) and ask them: What are the tradeoffs we should make between individual freedoms and the greater public good? What are tradeoffs we just cannot not accept? And what can we learn from over 30 years of fighting for human rights in the response to HIV and tuberculosis? Moderated by Meg Davis in Geneva.
Moving across the northern coast of Europe in winter, some evil old ghosts rise up from the frost-blasted landscape – but also new art, music, and the first sparks of the new year.
My ship from England lands in Rotterdam at the end of December. I roam around new architecture in the old working sea port. A sweep of new bridges tower over Hotel New York, where thousands of Dutch immigrants once set sail for New York. In World War Two, the Nazis razed Rotterdam. Today, spiky new buildings sprout up, preening over empty streets.