Keynote address to Thematic session of 49th UNAIDS Programme Coordinating Board, 10 December 2021
Thank you moderator, and also for the important work your team and UNAIDS does to strengthen data in the HIV response. It’s an honor to be asked by civil society and communities to join this important discussion on Human Rights Day.
I’d like to take this moment to reflect on the big picture. The hard truth is that funding for HIV is diminishing, and we urgently need data to make hard decisions. Who lives, who dies, increasingly depends on data.
But health data is not neutral: it is shaped by power and inequalities.
For this episode, I reached out to two good friends who are wonderful data nerds and activists, Shirin Heidari and Marina Smelyanskaya, to talk about gender, inequality and data. When I invited Malu Marin, a longtime activist for the rights of migrant workers in Asia, she urged me to talk to her friend Jolovan Wham instead – “a very committed activist working directly with migrant workers”. Jolovan has come under more than his fair share of pressure for his advocacy for free speech – so especially grateful to him for his time, and to all three of this episode’s experts. Continue reading →
How are inequality and discrimination shaping data about COVID-19, and who is being left invisible and uncounted? On the launch of her new book on data and human rights, Sara (Meg) Davis speaks to social worker and rights activist Jolovan Wham in Singapore, who describes how thousands of migrant workers are being detained in overcrowded dorms, and were missed by the official mobile contact tracing app. In Geneva, Dr. Shirin Heidari (GENDRO) and Marina Smelyanskaya (Stop TB Partnership) address the global need for feminist principles and respect for human rights to gather data on COVID-19. Davis’ new book, The Uncounted: Politics of Data in Global Healthis available from Cambridge University Press.